Monday 14 March 2011

When people I know go for the procedure

Holding my breath again this week and crossing every toe and finger as another person I know goes for venoplasty. It seems about two thirds see improvement, sometimes dramatic, as I did, and can be seen in the many YouTube videos across the net.

But what about the other third? I must say I am struck with a form of guilt when I hear their stories. Here I am, so much better than before, and they get nothing. I hope at least that this information will finally crack the enigma that we call MS.

Maybe this is not just one disease, with one set of causes, but a number of different ones, that result in similar signs and symptoms. Getting a diagnosis of MS can be a long and drawn out process for some, as all the alternatives are checked and discarded. For others it seems swift and relatively straight forward. For some, the diagnosis is never clear or straightforward.

So each time I hear of someone I know undergoing CCSVI investigation and treatment, I hope they have the same form of MS as me and all those other responders out there. But sometimes it doesn't work, and all they are left with is hope.

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