Into the unknown

A pharmacist by profession, I have tried to describe here the decisions leading up to and my experience of, the "Liberation Procedure", an experimental treatment for Multiple Sclerosis by correcting the venous drainage of blood from the brain and spinal cord. (CCSVI) Living with MS post "Liberation" is really a journey into the unknown.

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Friday, 8 June 2012

Is it nearly two years?

How time flies. It was when I came to make my latest entry to CCSVI tracking that it came to me just how long it has been since my treat...

Tuesday, 28 June 2011

The autoimmune theory --doctors ask, "Have we got it horribly wrong?"

Another interesting research paper dug up by Joan Beal: Have we got it horribly wrong? The following is the quote which begins a critica...

Tuesday, 7 June 2011

Information comes to light

I haven't posted in a while, as it seems hard to keep saying, yep I'm still feeling good. But that's the way it is. Some days ...

Thursday, 31 March 2011

Amazing video

I saw this clip on a friend's blog, Enjoying the Ride, (see links below at the side) and thought it was worth sharing with you: http:/...

Tuesday, 29 March 2011

Downside to treatment?

I guess this is a downside, but one I'll happily live with for all the gains I've had. My hay fever is back. Every spring, when th...

Wednesday, 23 March 2011

how fragile is confidence

It is now six months since I had my procedure, and life is pretty good. MS still reminds me that is has not given up on me; I have TN (trige...

Monday, 14 March 2011

When people I know go for the procedure

Holding my breath again this week and crossing every toe and finger as another person I know goes for venoplasty. It seems about two thirds...

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